Survey only for patients who passed TFR (Treatment-Free Remission)
Only for the patients who have passed TFR (Treatment-Free Remission), we do a small survey to find out your TKI (tyrosine kinase inhibitor) medication history and to evaluate the time to reach the TFR. To make this survey, we use two codes CMLer ID and CML Medication Status.
The CMLer ID is the description of the patient, It is completely anonymous (not the full date of birth (no day), nor the name, nor any address, ,…).
Only for the patients who have passed TFR (Treatment-Free Remission), we do a small survey to find out your TKI (tyrosine kinase inhibitor) medication history and to evaluate the time to reach the TFR. To make this survey, we use two codes CMLer ID and CML Medication Status.
The CMLer ID is the description of the patient, It is completely anonymous (not the full date of birth (no day), nor the name, nor any address, ,…).
The CML Medication Status is the history of TKIs you have taken since your diagnosis. As well as the TFR status. Each you changed a medication or a dosage or a TFR Status, you must create a new CML Medication Status.
This will result in a first personal table. A patient has only one CMLer_ID and several CML Medication Status. Here is an example:
The first personal table:
CONTEXT:
A patient has only one 'CMLer ID' but many 'CML Medication Status'.
For example, the patient can has only one 'CMLer ID'
(ex.: CA5311050315592) <<<< Keep this one for the survey
and also 5 'CML Medication Status' :
0-1000000000-400-20030615 at June 15, 2003
0-1200000000-070-20150112 at January 12, 2015
0-1250000000-400-20160117 at January 17, 2016
1-1250000000-000-20200114 at January 14, 2020 <<< keep the TFR one for the survey
0-1256000000-080-20210221 at February 21, 2021 <<< keep the last one for the survey
Note: Each time the patient changes his medication or the dose of his medication or his TFR status is changed (Treatment free remission), the
patient must create another CML Medication Status.
For more information, see https://www.cmleukemia.com/cmler_id.html
CONTEXT:
A patient has only one 'CMLer ID' but many 'CML Medication Status'.
For example, the patient can has only one 'CMLer ID'
(ex.: CA5311050315592) <<<< Keep this one for the survey
and also 5 'CML Medication Status' :
0-1000000000-400-20030615 at June 15, 2003
0-1200000000-070-20150112 at January 12, 2015
0-1250000000-400-20160117 at January 17, 2016
1-1250000000-000-20200114 at January 14, 2020 <<< keep the TFR one for the survey
0-1256000000-080-20210221 at February 21, 2021 <<< keep the last one for the survey
Note: Each time the patient changes his medication or the dose of his medication or his TFR status is changed (Treatment free remission), the
patient must create another CML Medication Status.
For more information, see https://www.cmleukemia.com/cmler_id.html
The second table of results (The date of diagnostic, the medication history and the time to reach TFR) will look like this:
CMLer ID CML Medication Status Time between TFR and diagnostic (years)
CA5311050315592 1-1250000000-000-20200114 14.58
US5212050225577 1-1256000000-000-20220223 17.00
FR4912041125871 1-1236000000-000-20210503 16.50
FR5112041127717 1-1236000000-000-20230515 18.50
BE6011041122322 1-1226000000-000-20220519 17.50
CA5312041125866 1-1256000000-000-20200627 15.58
US4712041125831 1-1356000000-000-20220411 17.42
AU6412100521360 1-1000000000-300-20131119 3.50
Note: Only the table of results will be published. To retreive the information of the table, use the two buttons below.
CMLer ID CML Medication Status Time between TFR and diagnostic (years)
CA5311050315592 1-1250000000-000-20200114 14.58
US5212050225577 1-1256000000-000-20220223 17.00
FR4912041125871 1-1236000000-000-20210503 16.50
FR5112041127717 1-1236000000-000-20230515 18.50
BE6011041122322 1-1226000000-000-20220519 17.50
CA5312041125866 1-1256000000-000-20200627 15.58
US4712041125831 1-1356000000-000-20220411 17.42
AU6412100521360 1-1000000000-300-20131119 3.50
Note: Only the table of results will be published. To retreive the information of the table, use the two buttons below.
Submitted Information in the survey
After you create your personal table:
Enter your CMLer ID (mandatory) Example.: CA5311050615592
CA5311050315592
Enter your last CML Medication status. (mandatory) Example.: 0-1000000000-400-20040215
0-1256000000-080-20210221 << keep the last one for the survey
Enter your CML Medication status when you get TFR. (mandatory) Example.: 0-1000000000-400-20040215
1-1250000000-000-20200114 << keep the one when you get TFR for the survey
Please enter in the comment all your CML MEDICATION STATUS (optional)
0-1000000000-400-20030615
0-1200000000-070-20150112
0-1250000000-400-20160117
1-1250000000-000-20200114 CML Medication Status when TFR
0-1256000000-080-20210221 Last CML Medication Status
After you create your personal table:
Enter your CMLer ID (mandatory) Example.: CA5311050615592
CA5311050315592
Enter your last CML Medication status. (mandatory) Example.: 0-1000000000-400-20040215
0-1256000000-080-20210221 << keep the last one for the survey
Enter your CML Medication status when you get TFR. (mandatory) Example.: 0-1000000000-400-20040215
1-1250000000-000-20200114 << keep the one when you get TFR for the survey
Please enter in the comment all your CML MEDICATION STATUS (optional)
0-1000000000-400-20030615
0-1200000000-070-20150112
0-1250000000-400-20160117
1-1250000000-000-20200114 CML Medication Status when TFR
0-1256000000-080-20210221 Last CML Medication Status
