Giora Sharf - CML - Chronic myeloid leukemia
Giora Sharf
‘I feel that my personal story reflects on the revolution that CML has gone through in the last 20 years. I was diagnosed with CML in March 2000. Through the Internet, I found out about the opening of the IRIS clinical trial and joined it in July 2000. I was randomized to interferon-alpha and took it for seven months. I was then switched to imatinib, which I took daily for 13 years and reached MR5. In June 2014, I stopped treatment and am monitored by PCR tests, which show that I am still in high molecular response. Let’s hope we can all reach a cure!’ (Giora Sharf)
Giora Sharf decided to use his experience to help other CML patients by founding the Israeli CML Patients’ Organization in April 2001. Starting with seven local patients in a small hospital basement, his organization has since then grown to support more than 500 patients from all around the country. In 2014, Giora founded a new Israelian Blood Cancer Patients’ Organization named ‘Flute of Light’ for patients with leukemia, lymphoma and other blood cancers in Israel.
He is one of the co-founders of the Leukemia Patient Advocates Foundation that hosts the CML Advocates Network, the Acute Leukemia Advocates Network (ALAN), the CLL Advocates Network, the MPN Advocates Network and the CML Horizons meeting. Giora Sharf is also involved in the Steering Committees of the CML Advocates Network and the MPN Advocates Network.
Extract of iCMLf - The 2022 iCMLf Prize is awarded to Giora Sharf and Jan Geissler
VIDEOS
Overcoming The Covid 19 Pandemic Challenges Giora Sharf
December 2020, MPN Advocates Network
World CML Day 2020 webinar Israel
October 2, 2020, cmladvocates
CML - Treatment Free Remission
April 2018, Chronic Myeloid Leukaemia CML UK Facebook Group
The CML Advocates Network
March 21, 2016, Patient Power Europe
The challenges patient groups face and how they help patients
March 21, 2016, Patient Power Europe
Giora Sharf Discusses Intentional, Unintentional Nonadherence in CML Patients
January 13, 2015, AJMCtv
Giora Sharf Discusses How to Make the CML Patient Voice Represented
December 8, 2014, AJMCtv
Jan Geissler & Giora Sharf
February 7, 2014, Brian Koffman
Presentation of the global CML Advocates Adherence Survey (Giora Sharf)
June 17, 2013, cmladvocates
BCEEEF 2011: Improving patient compliance with treatment schedules
May 23, 2011, ecancer
Overcoming The Covid 19 Pandemic Challenges Giora Sharf
December 2020, MPN Advocates Network
World CML Day 2020 webinar Israel
October 2, 2020, cmladvocates
CML - Treatment Free Remission
April 2018, Chronic Myeloid Leukaemia CML UK Facebook Group
The CML Advocates Network
March 21, 2016, Patient Power Europe
The challenges patient groups face and how they help patients
March 21, 2016, Patient Power Europe
Giora Sharf Discusses Intentional, Unintentional Nonadherence in CML Patients
January 13, 2015, AJMCtv
Giora Sharf Discusses How to Make the CML Patient Voice Represented
December 8, 2014, AJMCtv
Jan Geissler & Giora Sharf
February 7, 2014, Brian Koffman
Presentation of the global CML Advocates Adherence Survey (Giora Sharf)
June 17, 2013, cmladvocates
BCEEEF 2011: Improving patient compliance with treatment schedules
May 23, 2011, ecancer