Jan Geissler - Chronic Myeloid Leukemia - CML
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''Being a leukemia survivor that had participated in clinical trials to survive, Jan founded the online patient community Leukämie-Online/LeukaNET (http://www.leukaemie-online.de) in 2002, which is one of the most frequented online platforms for leukemia patients in the German speaking Internet today. In 2003, he co-founded the European Cancer Patient Coalition (European umbrella association of 315 cancer patient groups, http://www.ecpc-online.org) and became its first full time director 2008. In 2007, Jan also co-founded the CML Advocates Network (http://www.cmladvocates.net), which is now connecting 53 leukaemia patient groups from all continents. He today speaks for patients in various steering committees and advisory boards. He acts as an independent EU expert reviewing FP7 projects. In his professional life, he held various managerial positions in think tanks of the telecommunications and media industry before he focused his work on patient advocacy in 2008. Today he is founder and managing director of Patvocates, acting as independent consultant in cancer policy, patient advocacy and social media''
Extract of http://www.rarediseaseblogs.net/author/jangeissler/ |
Changing the paradigm in frontline CML therapy VIDEO
Prof Giuseppe Saglio - University of Turin, Italy;
Dr Delphine Rea - Saint Louis Hospital, Paris;
Jan Geissler - Co-Founder, CML Advocates Network
February 21, 2011, ecancer.tv
Jan Geißler: We, the patients
January 16, 2010,Cancerworld
An interview with Jan Geissler VIDEO
9 April, 2008, www.ecco-org.eu
Jan Geissler on Facebook
Prof Giuseppe Saglio - University of Turin, Italy;
Dr Delphine Rea - Saint Louis Hospital, Paris;
Jan Geissler - Co-Founder, CML Advocates Network
February 21, 2011, ecancer.tv
Jan Geißler: We, the patients
January 16, 2010,Cancerworld
An interview with Jan Geissler VIDEO
9 April, 2008, www.ecco-org.eu
Jan Geissler on Facebook
